Support and Connection

We are grateful to the Cohen Syndrome Association (CSA) for over a decade of critical work raising awareness and bringing families together. THE CSA hosts educational conferences and manages a Facebook group for parents. If you have a child with Cohen Syndrome, please request to join the Facebook group, "Parents who have a child with Cohen Syndrome." The Cohen Syndrome Research Foundation has an active Instagram page that is open to family, friends, professionals, and anyone who wants to learn about Cohen Syndrome and our incredible children.