Media
Stories from our community, updates on Cohen Syndrome research, and the vision behind our foundation.
2026 Eye on the Cure Video
2025 Eye on the Cure Video
Patient perspectives from the Cohen Syndrome community.
2025 Scientific Video
Perspectives from the scientific community.
About CSRF
Board members Ashley and Ben Waterman share the Cohen Syndrome Research Foundation’s vision for mobilizing our community to improve the lives of individuals with Cohen Syndrome.
